Every time I see this meme floating around the chronic illness community on social media I can't help but laugh out loud, mainly because it's so true that it's funny!
This Chronic Illness Truth applies to anyone who has a chronic illness that affects their joints, or even just anyone who is home-bound because of their illness. I really want to focus on the aspect of being homebound for a minute here...
I am a young, single adult that lives with my parents and I live in a household of all sick people. My parents and I have chronic Lyme disease, and we survive this illness by working together and yes, we spend a lot of time at home because we're too sick to go out, or if we do go out we pay for it later.
With this situation of mine, I always find it very frustrating to receive comments from people about how "I don't put myself out their enough," or "I just need to get out more!" This truth is important in order to demolish the stigma.
I am not a recluse that doesn't get out enough. Those who have chronic illness are sick to the point where there are days when leaving the house is unhealthy for us. Those of us who are home-bound are often in pain and managing to the best of our ability, and if you do happen to see us out we're either having a good day, or pushing through pain, or both!
So my message today is to REMEMBER. Remember to call the friend you haven't talked to in a while. Remember to invite us even if we can't make it. Remember to be present in our lives just like you would any other friend. It may difficult for us to navigate this illness, but we still intend to live a full life and we still need love, just like everyone else.
If you're home-bound because of chronic illness... you are still of great worth. Never forget that.
Comment below if you relate!
Okay, I realize that we haven't had Thanksgiving yet... and it may be a pinch too early for Christmas posts... but I've been thinking about Christmas since June so I'd say it's time!
I've always thought that there was something so enchanting about making wishes. And although I've never been one to think that success or happiness comes from a mere wish... that has never stopped me from wishing on a star, or tossing a coin into a well. Birthday wishes always make me smile, and Christmas wish lists always seem to grow in my head this time of year. But the funny thing is the transformation that has taken place within my wishes as I grow older.
As a child, my Christmas wish always seemed to be for the newest Barbie or the latest pair of shoes. As I got older, I always wished for a "boyfriend for Christmas" or "my one true love." And now my wishes always seem to be for less tangible things: things that are obtained through heart and hope. And although Santa may not be able to bring me a cure for Lyme disease (anymore than he can stuff a good man in my stocking...) I do know that Christmas is a time for miracles, and God has blessed me with many a miracle not only around Christmas time but all year long.
So to those who are wishing and hoping for healing this time of year: remember that healing comes one step at a time in the simple precious miracles that can be so easily missed until we take the time to look back and see what was happening all along. Healing, hope, peace, and joy are things that God intends for all of us to experience as we press forward with faith. Christmas can be a difficult time for those of us that have been stripped of many things through trial and trauma, but this year I pray that your heart will be full and your body will be at peace as it continues on it's healing path. May we all hold on to our hope and experience pure joy as we enter into the Christmas season.
This truth is for all of my single ladies! (Or should I say... single Lymies!)
It's no secret that a lot of people my age are out dating, getting engaged, getting married, and so on. It's also not a secret that I follow lots of chronically ill moms on social media because they inspire me and I aspire to be in that place someday. But alas, it also isn't a secret that chronic illness tends to put a damper on dating, and in my experience can sometimes have its way of extinguishing one's dating life altogether!
But I'm not sharing this truth to write my lament of a single Lymie... I'm sharing this truth because, in a world where I constantly feel the pressure to date and not be single, I sometimes think it's okay to be single for the time being.
A relationship is not a prize or a gold star that you wear on your sleeve. The person you love should not be a status that makes you look good on Facebook or Instagram, but rather love finds you with God's timing. And in the meantime, every individual has immense worth and potential on their own.
It's no joke that Lyme disease is usually the deal-breaker with many men, but it's also a truth that I'm grateful to my Lyme for weeding out the liars, the users, the shallow, and the ones with all the wrong intentions. Life gets very real with me very fast because of my illness, and every guy I've ever dated always seems to know that the second the words "chronic illness" escapes my lips. So it can get discouraging, but it doesn't take away my abilities to do incredible things while I patiently wait for God to send me the man that will support me in my illness just as I plan to support him in whatever comes our way.
So exercise patience. You are lovable, even with an illness. And you are incredible, no matter your ability... or disability in this case... True love comes in the right place at the right time, and in the meantime, Lymies and other chronic illness warriors can always choose to live their best lives. Thriving is always possible, in sickness and in health.
I have been learning this profound lesson about happiness lately and this is it:
God wants ME to be happy!! Not just everyone else, not just healthy people, not just people who seem to have it all together, but ME. Little, insignificant, sick, tired, and sometimes a little bit crazy ME.
For the longest time, I felt like I wasn't supposed to be happy. Like if I was happy it meant that I wasn't being refined enough in life, and I should be in pain because that's how I'm going to learn the hard knocks of life right?! WRONG. As necessary and as unavoidable pain and suffering are in this life, the end goal for each of us is still pure joy. Illness for sure has a way of refining you, to which I am thankful for those painful moments that teach me amazing lessons, but because I have Savior who empowers and a God who LOVES me, I know that I can find happiness despite my circumstances.
Don't get me wrong, in NO WAY is this always easy, but if you're in that place of darkness right now I BEG OF YOU; please don't quit. Please carry on. Please put on your extra strength and remember that pain is not meant to last into the eternities. It is meant to refine us in the here and now, and WE WILL GET THROUGH IT. God is bigger than us. And He can and will ease our pains.
This phrase is used pretty frequently in my house: "We'll take care of you, but we won't feel sorry for you!" Sounds harsh right? It may sound a bit harsh at first, but when you live in a house with only chronically ill people, you learn really fast that if you waste time feeling sorry for each other you never get ANYTHING accomplished in a day!
We all know the reaction of "I'm so sorry!" that chronically ill people commonly receive from others. I always feel minorly guilty when someone tells me how sorry they are that I suffer from chronic illness, mainly because I'm not sorry. I won't downplay how difficult chronic illness can be. I won't downplay the trauma, the dark nights, and the excruciating pain... but through it all, I've found that I just don't have the time to be sorry about it. I talk about my illnesses the same way that any other person my age would talk about college or career because it is such a big part of my life. I mention it casually in conversation because hiding it can be exhausting, and I talk about it all the time because raising awareness for such realities is SO IMPORTANT because I believe in hope for the chronically ill.
With that said, chronic illness is a PART of me. That does not mean that it defines me or makes me any less of a person or any less capable. I may have certain disabilities that can make life a little harder. I may fight every day. I may face darkness that others don't have to, but I do all of these things unapologetically because self-pity will ultimately get me nowhere.
So when someone opens up to you about their illness or deep dark sufferings, tell them you LOVE them. Tell them you BELIEVE them. Tell them you are HERE for them and you're NOT LEAVING. "I'm sorry" often silences conversation in this context. Say you're sorry when you've wronged someone. Don't say you're sorry because you don't know what else to say. Illness is for sure a tragedy. But every single one of us is currently learning to transform tragedy into beauty, and pain into healing. We are all simply looking for people that are wiling to help us along in this journey.
Comment below if you can relate and what you'd prefer people say to you when you open up about your illness!
Who feels like happiness and enjoyment that come your way are often accompanied with guilt because you're chronically ill??
I know I struggle with this REGULARLY, and so I'm here to tell you that you DO NOT have to feel guilty or ashamed during the rare moments of joy that bless your life when you're chronically ill. Lyme disease is an INVISIBLE illness, as are many chronic illnesses and disorders. We may not "look sick" 24/7, but you do not have to prove anything to anyone. What is "sick" supposed to look like anyway? I'll tell you that some days it's ugly, but some days life is good and those are the days that I must embrace in this journey. Pain and suffering do not have to be validated or believed by others in order for it to be very real, and very scary. And despite all of the pain and agony that I've faced in life, I've found that there is an awful lot of beauty and joy to be found as well; (it just may take a little longer to find than it does for the some).
So the next time you're having a moment of joy, gratitude, laughter, love, or happiness, EMBRACE IT! Don't let guilt rob you of what you are worthy of, which is immense love and happiness. Yeah, we're sick and in pain (sometimes more often than not), but chronically ill people also have a way of lighting up any room that they happen to be in.
Suffering is inevitable in life. You cannot avoid it, for it is often what shapes and transforms us into gold. But despite it all, God wants us to be happy. And through Him, we can find that happiness even in the midst of suffering.
Comment below if you can relate and tell me about your life's happy!
Let's talk about dating for just a minute. Dating, relationships, friendships, social outings, you name it; I guarantee that anyone can relate to feeling like their illness is CONSTANTLY third-wheeling it with them!
It's normal to feel different and want to spend most of your energy on hiding your differing lifestyle from your friends, dates, or even family at times. I've found that it's best to just be yourself, and if your illness happens to rear it's ugly head into a conversation or situation and people don't response well, then those people are not worth having in your life anyway. Illness and disability do NOT define you. It may make my life look a little unique. It may add a little sparkle to the conversation, but in no way does it determine your worth or your power in life.
Every single person on this planet has baggage and problems. Everyone has things that we are working on. Everyone has that something that third wheels it with them. I used to have to work on getting out of bed and walking across the room. Now I work on not letting PTSD run my life. Whatever it is, the important thing is that I keep aiming for healing, improvement, and joy. Chronic illness may be something that is often accompanied by stigma and fear in the eyes of many, but the truth is that chronic illness has a way of bringing out the strength and beauty in those who carry that cross. I may have Lyme disease, but Lyme does not take away the strength and spunk that comes with it. As is with all chronic illness warriors.
Comment below if you relate and tell me what character qualities you have that your illness will never take away from!
We live in a world of LABELS! We label EVERYTHING based on what we can see on the surface, and the reality is that the true depth of most people is found in their heart, which is something that takes time to see.
I've recently been having a difficult time navigating talking about (or not talking about) Lyme with healthy people. I've had so many experiences where it seems like the second I mention Lyme in a friendship or relationship, then the massive brick wall of Lyme disease is now placed between me and that person. This phenomenon of a Lymie's social life can often leave those of us who are suffering feeling alone and misunderstood.
While it's true that Lyme disease plays a huge role in my life and has sculpted me into the person that I am today, I promise that I live for more than just dozens of pills, treatment protocols, and eating organic. I'm not just the "sick girl" that needs help. I'm a girl that loves writing and singing. I'm a girl with the big heart that laughs a lot and has this deep need inside her to help those who are suffering. I'm the girl who's been beaten and broken down by the storms of life, but is in every way healing and striving every day to keep a smile on her face (even if some days I totally fail at it.)
The truth is that I will proudly wear the title of "Lymie" on my sleeve, but that doesn't mean that I'm not still 100% Claire. There is so much more to people who suffer from chronic illness and disability. You simply have to give them a chance. You are not the sum of your trauma, and you are not your illness. Most of the souls inside of these broken-down bodies are absolutely beautiful, and we must remember that as we interact with those who have walked different paths and traveled difficult roads.
Comment below if you can relate to having a hard time getting through the "chronic illness wall" with people, and what you do to remedy the negative labels that people can place on the chronically ill!
I'm a young single adult and I should be having the time of my life, right!? Not exactly...
I always find myself at a loss for words whenever someone asks me what I've been doing "for fun" lately! Not that juice cleansing, resting a lot, and Lyme treatment isn't fun or anything, but I'm pretty sure that's not the answer that most people are looking for.
The reality of chronic illness is that a lot of those who suffer in this manner do not have the energy or stamina to go out and have the kind of "fun" that everyone else is having. The reality is that a lot of us are homebound and we've spent countless time coming to terms with the fact that having fun simply means not being in pain for a day, or even for a minute or an hour. Lyme disease has often had its way of making me feel like "the flaky friend" or the "friend who never wants to go out." Almost every chronic illness warrior shares the same story which results in dozens of friendships lost and insufferable loneliness because so many refuse to just love a person in pain and stillness.
Let me get to the main point here: It's easy to be the "fair-weather friend." It's easy to stick around when things are good. It's easy to artificially love someone who always seems to be in the middle of an "epic adventure." But in life, there will ALWAYS be fire. And when that fire comes, those friends who only want you around without your burns and scars are really not your friends at all.
So here's a friendly tip to all my healthy friends: When you have a friend who is suffering from the heat of chronic illness, the BEST thing you can do for them is to sit with them in that painful space and JUST BE THERE. LISTEN. And offer LOVE and SUPPORT. You may not always be able to douse the flames of their life fire, but you can always help them bear the burden so they are not left to do it alone.
I am always amazed at the level of compassion that chronic illness warriors have for those who suffer because they've felt the burn themselves. May we all strive to have that deep compassion and love for the sick and afflicted.
Comment below if you've experienced the loss of friendships because of your illness and what you need when you're in YOUR life fire.
Okay, obviously this is a little exaggerated but how many of us in the chronic illness community often feel like an alien from outer space compared to everyone else who is healthy?
I often find that there are so many things I have to do to make it through the day that other people don't, and it often makes me feel isolated and weird. I take pills when I wake up, at breakfast, at lunch, at dinner, and before bed to manage my health so I can function. I have day time pajamas and nighttime pajamas for the days that I'm bedridden. And although I may not be on a gluten-free, dairy-free, sugar-free, paleo, keto, vegan diet.... I often find that what I choose to eat (or not eat) can often make me feel separate and different than everyone else even though I do it for my health.
My point in this truth is this: DIFFERENT is not bad. Literally, everyone has their own quirks and idiosyncrasies. Maybe I have more than the average person, but that doesn't make me less of a person or less capable of living a full life. If you spend your day on IV's, taking pills, sleeping, eating healthy, and lounging in pajamas because normal clothes either cause pain or severe itching IT'S OKAY! You're not "weird" because of these things. In fact, it is the depth of our differences and the strength behind the differences that give those in the chronic illness community great beauty and elegance in how they live their lives. It's important that we all strive to remember that and to increase love and understanding, and decrease false judgment and ridicule.
Comment below if you can relate and something that you do as a chronic illness warrior that makes you feel different!