"What is Lyme Disease?"
I've come to know that the MOST common question that any Lymie receives is the aforementioned question above. I've found myself answering this question dozens of times, and I am quickly reminded how tragic the Lyme epidemic is due to the lack of information and education that the average person has on the topic. There is nothing "rare" about Lyme disease, as there are 27,000 new cases of Lyme disease in the United States every MONTH! And yet those who do not suffer from it often seem to turn a blind eye to it because the medical system has caused society to believe that it "doesn't exist." As a Lyme survivor myself, I can attest that it does exist, and it is one of the most challenging adversities that I believe a human being can suffer from.
So what is Lyme disease? Lyme disease is a bacterial infection that can spread to virtually any organ system in the body due to its spiral shape that easily can drill into any tissue, cell, muscle, or organ. Lyme disease and its co-infections can attack its victim and leave it completely paralyzed or in severe and unbearable pain for years, and Lyme disease is a constant battle to fight and the chances of beating it are slim to none. And yet there are thousands who fight every day, despite the harsh reality that is Lyme disease. Lyme disease is science, and yet it is so much more.
Lyme disease is pain. More pain than I ever believed a single human being could bear on their own until I was forced to bear it myself and watch many of my loved ones bear it as well. Lyme disease is loneliness, isolation, and insufferable boredom as you spend a lot of the time waiting for a treatment to work (or not work), waiting to feel better, waiting on doctors and support that never comes, and waiting to be well enough to be able to live life like anyone else. Lyme disease is blowing all your money on treatment that you don't even know will work, trying anything and everything to feel better, and crying in prayer during many dark nights because it's impossible to endure on your own. Lyme disease is hoping. Because sometimes when you've been stripped of everything, hope is the only thing you have left. And let's not forget that Lyme disease is resilience, patience, perseverance, and at times its just pure grit. Lyme leaks into everything, and it changed my life. And it is currently changing the lives of thousands and millions of others who are fighting the good fight every day of their lives.
Why is it important that we seek to crush Lyme? Because with so many suffering, we have to fight to crush the disease before it crushes us. And if we all ban together on this issue, we may find that doctors, friends, mothers, fathers, brothers, and sisters will start to listen to us. And once that happens we can change the world. We can offer more help and hope for the hands that hang down by the crushing the grip of Lyme.
So the next time you find yourself talking to a fellow Lymie, take time to LISTEN and offer love and compassion. That small act can truly be one big step into crushing Lyme disease and the stigma that comes with it. Lyme disease may try to crush us, but it never will because we do not intend to quit anytime soon.
This post was inspired by Splash of Lyme's "Crushing Lyme" campaign. You can follow this amazing Lyme warrior by following @splashoflyme on Instagram and checking out her amazing blog here. Thanks so much to Courtney for starting this and for sending love to all the Lymies this Lyme Disease Awareness month!
Stay in bed and cry all day, and you're not trying hard enough.
Show improvement and look beautiful, and you're not actually sick.
Share your terrifying reality with others, and you're seeking attention.
Keep to yourself and pretend that everything is okay, and you're not actually sick.
Smile, and you're not in pain.
Cry, and you're in more pain than the people around you can tolerate.
I've found myself spinning this dizzy cycle in my head lately and trying to understand how I'm supposed to act and feel as someone with a chronic illness. I've found myself listening to the discouragement that comes from this vicious cycle from other chronic illness warriors. And I've seen lots of posts on social media expressing the same concerns in attempts to understand what exactly we're supposed to look and feel like as chronically ill people.
Unfortunately this perception that other people can sometimes give is frustrating and causes a lot of guilt and an unnecessary inward struggle. I often put extra pressure on myself because apparently there is a certain "look" that chronically ill people have and if we don't fit that particular "look" then we're not an acceptable sick person. The irony of that is that nobody actually knows what that "look" is. They just believe that it's different from whatever vibe we're giving off.
I believe this pattern can be found in any kind of misunderstood suffering. If you haven't been through it yourself, you don't understand, and while it's okay to not understand, it's also important that we increase our love and compassion towards that level of suffering because generally, the person is already suffering enough without that extra pressure. We don't need to put that pressure on ourselves or others because the reality is that PAIN AND JOY CAN COEXIST, and it's okay!
Your Traumas Don't Define You
"I don't want to be known as the sick girl."
I remember having that thought when I was at my worst. I remember feeling extreme frustration from my desire for people to offer extra love and kindness that I desperately needed at the time, but also to know that there is more to me than Lyme disease. It seemed to me like I couldn't have both and I remember feeling like I was never enough because I was now some disease that controlled my entire life and trashed my hopes and dreams for my future.
Fortunately, that was never the case at all, and I've since learned that it's not your traumas that define you. I have Lyme disease. That doesn't mean I am Lyme disease. Your traumas, afflictions, and adversities in life are there to shape and refine you into the person that God intends for you to be. They exist to soften you and shape you. It's through the furnace of fire that we become flexible and transformed into something beautiful. The piece of coal that never had to undergo heat and pressure was still just a piece of coal in the end. We may come out with a few burns. We may be wounded. But we're not eternally broken or stamped with our eternal label. Nobody comes out of this life with a big stamp on their forehead that states their largest trauma.
It's not our traumas that define us, but how we choose to respond to those trials. And sometimes our response is a day in bed or a day in tears or simply doing the best we can do at the time, and that's okay. And other times that response is laughing through the tears and smiling through the heartache, and I've learned that those days are often some of the best days. Some of those days are the days that we learn important life lessons that change us forever. On those days there is no "look" that I feel the need to have. It's just me in my most raw form, and sometimes that form is exactly what I need to be in the moment.
A friend once told me that it's okay to cry. It's okay to stay in bed for a little while. It's okay to be debilitated for a moment. Just don't freeze. The joyful message is that even in moments of pain and paralysis, we don't have to freeze. We can continue on to the best of our ability with hopeful hearts. Our best efforts are always counted in the sight of the Lord, and when we're given that knowledge, we don't have to submit to all the views of other people. When we press forward the best we know how in our adversities, we can come to a place of self-love where we can be happy with our own state of being, whether that be in tears or in laughter.
How is it possible for joy and pain to coexist?
I've often found in life that opposites can regularly coexist. I've found that I can make a list of things I love about myself, while simultaneously making a list of things I hate about myself. I've found that I can be in pain and still find things to smile about. I've found that even when I feel hopeless, there's still hope in the journey.
How is that possible? How can pain and joy exist at the same time? That phenomenon is made possible through a loving God who keeps His promises, and a Savior who was sent to succor and sustain us when we can't manage to sustain ourselves.
First, God promises us that ALL trials come to an end, even if the end isn't seen in this life.
John testifies in the book of Revelation of the people who "come out of great tribulation and have sanctified themselves... that God will wipe away all tears from their eyes." (Revelation 7:14-17)
He then later testifies of God's people and how "God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain." (Revelation 21:5)
And then there is our Savior, who He Himself declared at the end of His sufferings: "It is finished." (John 19:30) There will come a day when every single one of us will be able to declare that "it is finished." Our sufferings do come to an end, not always through death, but through healing and enabling love and power made possible through Christ.
That fact alone is something to rejoice about.
Second, God consecrates all of our afflictions for our good and promises us that our glory in heaven will be returned twice as much as our suffering on earth.
Peter tells us that the trial of our faith is more precious than gold. And "although we may be tried with fire we can be found unto praise, honor, and glory at the appearing of Christ." (1 Peter 1:7)
He then later tells us to "think it not strange concerning the fiery trial which is to try you, as though some strange thing happened to you: But rejoice, inasmuch as ye are partakers of Christ's sufferings; that when his glory shall be revealed, ye may be glad also with exceeding joy." (1 Peter 4:12-13)
God reveals to us in those words that we can REJOICE during our fiery trials. That does not diminish our pain. That doesn't say that we're not actually suffering on such a horrendous level. That doesn't tell us that we're not allowed to feel our pain because that's a sign of weakness, and we lack faith if we feel pain. It declares to us that suffering isn't a strange thing to our Father, and He understands, and He promises hope for a better future. We can be ourselves, and we can find joy in the moment. Not the kind of joy that promises no pain and tear-less eyes, but an inward joy that declares in our hearts that this too will pass.
It's okay to look like you're struggling. It's okay to look happy and beautiful. You should absolutely share your reality with others, and if you feel the need to fake it until you make it then that's okay too! It's okay to smile when you're in pain, and it's okay to cry in front of people even if it makes them uncomfortable! Life is full of ups and downs that we were meant to experience. And as we become accustomed to pain, we are granted the blessing to experience joy, even in the midst of suffering.
Thank goodness for a merciful God and Savior who loves us through it all.
I found myself reminiscing today. I found myself look back, and then regretting it. I frequently resist moments of nostalgia that creep into my mind merely because the happy memory is usually accompanied by a deep ache that penetrates the strongest of walls around my heart. Happy memories are often escorted by laughter that's been silenced, love that somehow managed to slip through my fingers, and time that's been burned over with more time. It often feels like the road behind me is coated with blood and ash which drives me to never look back and fear the moment I choose to take a step forward.
I suppose this is grief at it's finest. I often grieve the life I had before, or the life that never existed because it was replaced with pain and tears that were accompanied with my diagnosis. I often grieve when I watch young people that are out living their lives without a thought as to how they feel physically, or what they eat, or what they're breathing in. I suppose that ignorance is bliss... but I never got to experience that bliss in my first years of young adulthood, and I the grieve the idea that maybe I've missed something. I grieve the idea that my moments of bliss were replaced with heartache and pain... and that just can't be fair. Becoming so well acquainted with grief at such a young age just can't be fair.
I remember when I was six year old and my pet rabbit died. I cried for one night.
I recall when I was fifteen and my best friend betrayed me. I cried for a week.
I was sixteen when my "first love" broke up with me and I cried for a few weeks.
I was seventeen when I lost the presence of my mother in my life to a disease the robbed her of her quality of life. I cried every time I came home to her screams of pure agony.
I was eighteen when I lost my will to live after I was diagnosed with the same disease I watched my mother suffer from for so long. I cried for years as I fought long and hard for my life. I still cry if I think about those moments for too long.
Perhaps I'm just an "emotional person." Perhaps I don't have what it takes to cope with real life. Perhaps some of those things were silly at the time and weren't worth my tears... but despite everything, I've found that it's possible that our hearts are meant to bleed this hard. Maybe we were meant to be broken so we can be healed and revived twice as strong. Maybe life is fair simply because it's so unfair for everyone. How does one experience pure joy if they are never exposed raw pain?
I've bled and cried, I've kicked and screamed, I've complained and raged, I've faithfully and willfully continued to put one foot in front of the other despite the hardship. And what's come from it all is a sense of comfort despite the strong discomfort that plagues me regularly. I suppose the kind of bliss that comes from ignorance isn't really bliss at all because someday you'll find yourself in the sick bed... and you'll wonder what went wrong... just like I did.
I've come to love my sensitive nature. I've come to appreciate my keen sense of air pollution and unreal food. I've come to smile at the funny looks I get from people who can't comprehend why I eat organic. I often ask myself who in their right mind would want bliss if it is required to be accompanied with ignorance? I've come to realize that joy and bliss are two different things, and wisdom doesn't come with age... it comes with suffering...
I've come to gain a deep love for people who suffer on deep and penetrating levels. I've gained a deep respect for people who suffer in ways that change them forever. Suffering that erases the ignorance and replaces it with a sense of comfort and peace even in the storm of discomfort and pain.
These kinds of people are warriors. These kinds of people are the people that have been sculpted in the midst of adversity. These people have let go and let God transform them into beings of light and vitality. These are the people that have discovered great depth in life. These are the people that have experienced the great ache that leads to resilience and fortitude that I myself have not yet mastered.
Perhaps hearts were meant to bleed this much. Perhaps bodies where meant to break down. Perhaps tears were meant to be shed. Not because we live in a cruel universe... but because God has a Divine Design that can transform blood into healing, breaking in wholeness, and tears of grief into tears of rejoicing. May we all learn that lesson in hopes that we can grow in strength and everlasting joy.
Perhaps we all need to reminisce sometimes... Because the past is at times our greatest teacher and mentor. And in the meantime, I've come to love the sound of my feet walking in the direction that God intends for them to be... because the blood and ash behind me doesn't matter at the sight of beauty and light ahead of me.
There is one truth that for the longest time I never believed for myself. But now I believe it, and I want everyone who suffers on levels such as this to know:
HEALING IS POSSIBLE. HEALING CAME FOR ME, AND IT WILL COME FOR YOU TO!
Healing is not something that occurs in one swift motion. Healing does not come in an instant, and healing isn't an easy process. Healing is a cleansing process. A cleansing process of one's mind, heart, and soul. Healing is a choice. We are NOT a result of what happens to us in our lives. We are a result of how we REACT to what happens to us. There are things that will come that are completely out of our control, but how we choose to react to those things will determine our destiny. If we choose wisely, we can experience healing along the road that at times will seem relentlessly long.
And here's the good news: WE ARE NOT ALONE ON OUR PATH TOWARDS HEALING! Isn't that a glorious message!? We have a loving and merciful God who is there for us every step of the way. We have a Savior who knows EXACTLY what we are going through because he suffered all of these pains we feel long before we felt them. And we have angels that we cannot see who are there to love and support us and they are fighting our battles with us. You see, we are never truly alone on our painful journeys. That was something I had to learn before I was able to get up, overcome the initial shock, and move forward in faith.
Healing doesn't come through choosing to be the victim in any certain circumstance, and for me I had to push past the agony that was taking place in my mind and heart, and make specific decisions and take action towards healing. Small choices I made back then made a massive impact on the state of my heart as time passed. These are action steps that every single one of us can make. And no, making these decisions doesn't make the heart-stopping pain hurt less, and it doesn't induce instant healing, but it teaches and heals one step, one second, one minute, and one day at a time.
These are the things I had to experience in order to reach healing:
1. I had to decide right away that I wasn't going to let this destroy me. Throughout the course of events I resolved to be strong even if I felt like the weakest person on the face of the earth. For so long I felt like a little girl that couldn't control her feelings or emotions. I felt insane and I figured that my sanity was out of my control at the time. To a point it was... there were things I couldn't control. I couldn't control the deep ache that settled in my chest for weeks. I couldn't control my inability to sleep, or my lack of appetite due to the nausea that seemed to follow me everywhere. I couldn't control the horrific nightmares I had when I did sleep, and I couldn't control feeling overwhelmingly heavy all the time, almost as if an elephant was constantly sitting on me.
So, I took hold of the things I could control. I controlled how often I fell on my knees and talked with my Heavenly Father. I controlled opening up God's word and reading to find peace and wisdom. I controlled the fact that I wouldn't allow myself to be left alone at any given time for the first little while. I controlled who I spoke to and who I did not. I controlled which texts and phone calls I answered and which ones I did not. I was constantly seeking for peace. Hidden in all of these little insignificant choices was my deep desire to not let this tragedy destroy me. I wanted so desperately to be strong, and I learned along the way that all of us are blessed with that strength inside of us. God is more powerful than pain, and He can bless us with extra strength if we so choose to develop it.
2. I decided to find myself by losing myself in the service of others. One wise teacher, mentor, and friend once told me that "you find yourself by losing yourself in the service of others." I figured in this case I didn't have anything else to lose so I might as well distract myself at least. I expressed at one point my deep and painful feelings to this friend who offered me the opportunity to come volunteer as his TA for a semester at a local high school. I'd be working with high school seniors, and for whatever reason I felt a desperate need to except his offer.
Without going into great detail about that glorious experience, I have to admit that it was a MASSIVE blessing at this time in my life to get to know those high school seniors. Being greeted with "Good morning Miss Dalton!" every morning brought such joy to my soul for a time, and my heart felt full with love for those bright and beautiful teenagers that I was working with. Serving others played a tremendous role in my healing process, and it can in yours too. It's all a part of opening up your heart again to be able to love. Love is the greatest healing power in the entire world, and when I let a small piece of my heart love again, it meant the beginning of that small piece being mended and restored little by little.
3. I had to purge my past and forgive. Forgiveness was one of my more difficult tasks on my path to healing. I wanted to believe that I had forgiven him from the beginning. And I had reached forgiveness to a point, but I hadn't let it all go. I spent so much time being angry at him for destroying me. I spent so much time agonizing and reliving those moments of horror. I spent so much time feeling terrified of the people I came in contact or with, or afraid that maybe I didn't have a future past this experience. Honestly, I had to experience those difficult feelings in order to truly forgive and surrender my past in a way that doesn't let it define my future. Along the way I learned some things about forgiveness.
First, forgiveness does not mean putting yourself in a place where your heart keeps breaking. It doesn't mean reinserting yourself into someones life who has hurt you tremendously. Sometimes we have to love and forgive people from a distance, and that's okay. Second, forgiveness is not the same as excusing. We do not have to excuse someone's wrongdoing in order to forgive them. In fact, the more we allow ourselves to experience and recognize the damage that has been done, the greater our capacity to forgive, change, and move on. And third, forgiveness creates a safe space to allow God to heal your heart. Restitution for me came from my Savior, and it came in the form of healing and restoration of my heart and mind. Once I achieved forgiveness with the help of the Savior, I was able to feel free again which opened my heart up to be healed and purge the negative emotions I had towards the one who had wronged me. We all have that power to forgive. And if we don't have that power in the beginning, pray for that power. God will bless you with the innate power to forgive and move on.
4. I had to give all of my pain to my Savior. I remember a very specific time in the course of events where I learned this crucial life lesson. I had just moved with my parents, I was in a new place, and I had met some new people that I was terrified to open up to or think about to much. I was sitting on the edge of my bed one night in horrendous emotional pain. I felt panicky and weak and my heart hurt tremendously. I felt confused and angry and I sobbed uncontrollably for the loss of my peace of mind. It had been months... I should be over it... I shouldn't be hurting so much. In that moment I wondered if I would ever feel peace again.
At the time a thought came to mind that I had read about how the Savior is just waiting to heal us of our wounds and misfortunes, but in order for us to allow Him to heal our hearts, we have to ask for healing. It occurred to me at that moment that I had not yet simply asked for Him to take my pain. It seemed impossible for one moment of inquiry to heal such a wounded and broken down heart. But I had to try, and I had to muster up enough faith for healing to occur. I retreated to my knees and pleaded with the Lord to heal me. To take my pain. And I remember clearly stating, "Please... I don't want this anymore!"
At the conclusion of my prayer I felt stillness, and I felt an obvious lift in my heart. I felt anger melt into the floor, and I felt peace fill my soul as the tears flooded down my face. I knew in that moment that my prayer had been heard, and that I was currently in the process of having it be answered. My merciful Heavenly Father was going to take all my broken pieces and build them into something beautiful. I just had to excersise patience, and after that moment, my grief and pain in the days to come was less intense, less excruciating, and more bearable. It was nothing short of a miracle and I know it's because when we lay our burdens at our Savior's feet, He heals us.
5. I had to recognize that I still had worth. I was broken, wounded, damaged... I've used those words to describe myself so many times. I knew that to most men I was "damaged goods," and in my mind I didn't disagree, and I didn't believe that I had anything to give or offer anymore. But in order to experience healing, I had to learn differently.
Nobody is ever just eternally broken or damaged unless they choose to be that way. I have so much worth, and so much to give in my interactions with others. I may be broken, and I may have some scars, but my brokenness has transformed me into something beautiful. It's ironic because in the midst of it all, in the past year my capacity to love others has grown. I know now that someday when I discover the man who I was meant to be with, my love for him won't be any less because of the love that I had for the man who hurt me.
You're not broken! You're not damaged! You're not worthless! And in the sight of God, you have infinite power and ability to love and be loved, and continue on your path towards success and happiness. That was something I wish I would have understood faster, because it's so crucial when we are healing to know who we are, and by knowing who we are, we can take back our power that God blesses us with to prosper and live life to the fullest.
6. I had to be thankful. Gratitude is essential for healing. Either I was cursed because I lost who I thought was the love of my life. Or I was blessed because I was saved from being put in a situation that would have destroyed me so much more if it would have gone on longer. I've come to know that I was gloriously blessed, and I thank my Heavenly Father every day for saving me without me even knowing that I needed to be saved. When we express gratitude, we open our hearts to healing and happiness and let go of things that we no longer need to hold on to. It's not easy to find gratitude after such horrific experiences, but it's possible to find it. We simply start by seeking for the desire to be thankful. After that, it will come if we exercise faith.
6. I have to keep striving. Stop crying. Get out of bed. Put one foot in front of the other. And continue on in faith doing the things you know you should be doing, and the rest will fall into place. You don't get anywhere in life if you spend it crying in a bed or a chair. You experience peace and healing by living and moving forward. And I will be the first to admit that it is not always easy. There will be days for a long, long time where you grieve and cry. There will be days where you will feel like you cannot continue. There will be days where all of your feelings come to the surface in the form of tears. And there will be days you just want to scream because you cannot avoid the prickly parts of healing from trauma.
But I promise you that there will also be days where you find unexpected smiles creeping across your lips. There will be days when you'll meet new people that you're meant to love and be loved by. There will be days when you find yourself laughing again. There will be days when you'll experience joy in the moment, peace for the past, and hope for the future. These moments are what make the painful moments completely worth it.
Healing is possible. It doesn't come instantly but IT DOES COME. There are still days that I hurt and struggle. There are still days that I have to relive the past. There are still days that I experience longing and hopelessness, but they get less and less the more I strive for healing. It's important to remember that you are always loved. And there is ALWAYS help and happiness ahead.
When a person undergoes such a deep traumatic event that is the betrayal of a loved one's trust in such a circumstance as mine, there are two realizations that occur. These realizations came so quickly for me, and they destroyed me to a point where I couldn't feel anything in the moment. I simply felt dreadfully numb.
The first gut wrenching realization was the betrayal itself. I felt like I'd been cheated on. It changed my entire relationship with him including all the happy memories that we had shared in the past. It made me feel worthless and unlovable. It made me feel like it was all my fault, and if I would have just done one thing or another differently, I could have changed something. The betrayal itself cut like a knife, but the second realization cut even harder.
My second realization was that someone I loved and cared for deeply had been expertly lying to me for the entire length of our relationship, and possibly longer since we had been friends for so long. All at once I was with a stranger instead of the person I thought I knew so well. In an instant I could never trust those lying eyes ever again. In order to lie to somebody that you spend such large amounts of time with, it takes expertise thought and effort to hide such a big secret. So not only did he lie, but he planned carefully how to lie and get away with it. And not once did it ever cross his mind how much that would hurt me. That fact stung. It stung deep, and it stung hard. All I ever wanted in a relationship was honesty, and it quickly occurred to me that the only honesty I'd known at that point in time was fake.
Neither of these deep realizations felt real to me at first. I woke up every morning for quite some time thinking that maybe it was just a sick joke and tomorrow would be better and back to "normal." It seemed so unreal to me, and I didn't know how I was ever going to live my life without him, or without my "happy wedding" going through. Along with everything else I was feeling, I felt dreadful loneliness deeper than I've ever felt before, or that I've ever felt since.
These intense feelings lasted for quite some time, and there were days that I wondered if I had lost my mind, or my sanity... or both. Nothing seemed to make complete sense to me as I was forced to navigate functioning in this cold and distant reality while everyone else went on with their lives in the present. I felt stuck as I learned that navigating this form of trauma was something I had to take one day at a time.
The first signs of healing were the greatest blessing to me. The first signs of healing were like a massive weight being lifted off my shoulders by some Power beyond my own. That first taste of healing came in the form of less tears and a clearer mind. At one point I had finally lost the constant feeling of needing to scream all the time, and that elephant that was sitting on me finally left my presence. When that occurred the tightness in my throat and the constant nausea lifted and I felt incredibly thankful. The first bits of relief made me feel like I'd been delivered into a place where I could function in the present again, and I began to find myself and navigate my new skin. What I didn't know was that navigating my new skin would not be an easy task.
My new skin... I didn't even know I had shed an old skin. I just felt awkward and uncomfortable most of the time, and I didn't completely understand why. I felt vulnerable at that time, and as I learned to navigate my new skin that vulnerability beamed a little too brightly.
First, I found myself talking too much. Up until then I'd spent most of my life like a little mouse too afraid to say anything in fear of "rocking the boat," or "offending someone." Now, as if in one fell swoop, I couldn't get myself to stop speaking my mind. It's like I woke up one day and realized that I had intelligent things to say, and then I resolved to not let anything stop me from saying them. I felt like I had a story to tell, and I was going to tell anyone and everyone who was willing to listen. I rolled the events in my life over in my head a million times, and as a result of that I probably rolled those thoughts over to a half a dozen random people. Some of those people left deep hand-prints on my heart as they played an incredibly important role in my healing process simply because they were willing to listen. Some are now some of my closest friends, to which I'm thankful for that unique time in my life.
After this odd phase of grief, I went through what I felt at the time was a relapse. I spent many long nights crying myself to sleep, grieving over what I'd lost, and trying to keep silent about it because I didn't want to burden anyone with past pain that very much manifested itself in the present moment. I told myself it was past and I had no reason to be hurting this greatly now. I learned later that what I was experiencing was completely normal, and you don't just overcome trauma in a few months time.
Believe it or not, that phase of grief passed as well, and little by little I started to feel like myself again. I suppose that brings us to the here and now. It's been one year, and I feel like a completely different person. It's funny how pain increases your capacity to feel both the good and the bad...
I am now driven to tears so much easier than I used to be.
When others express their pain to me, I quite literally can feel their pain.
Fear is a constant companion of mine.
The thought of opening my heart up to someone again makes me feel sick and panicky.
I almost always feel suspicious of the people around me that I don't know.
The walls around my heart are stronger than ever and it's going to take a miracle to break them down.
I don't trust people. I just don't.
The problem with walls is that the resolve to have such a strong defense is lonely and isolating. But it's so much easier to resolve to never love again because if I stay on my own, I don't have to fear the cost of betrayal, or the cost of a broken heart. Such dilemmas as this are not things that I will even pretend to have figured out, because I have not. But... I do know that with the negative impact there have also been blessings...
I have discovered my strong will and determination to stand for what's right.
I now found the courage to speak my mind and the temperance to hold my tongue when necessary.
I have a new sense of resilience that rests in my heart at all times.
I have recognized that after such a deep wound to the heart comes the greater capacity to love those around me.
I have also identified the need that everybody has for compassion and the great ability I have to offer that love and compassion to those in my life who are going through difficult things.
I have gained a greater faith and hope in God's plan for me and for His eternal perspective of my life's purpose.
My trust in people my be slim to none, but my trust in God has increased ten fold and continues to sustain me through the pains that I still sometimes suffer from.
Betrayal trauma is real. It's long term effects are real. And the pain it causes is real. As a victim of betrayal trauma, you have every right to feel your pain at it's true capacity. And then once you've recognized the true capacity of that pain, it gives you the power to be able to shed it and then create something beautiful out of it.
I feel as though I'm walking on a tightrope with me on one end, and all of my possible dreams for the future on the other. As I carefully force my aching and trembling body to take one careful step at a time, there's this constant fear that nags at the back of my neck that someone, at any given moment, is going to walk up behind me and push me just enough to send me plummeting to the deepest depths of despair. Thankfully that hasn't happen yet. I'm still carefully placing one foot of my broken body in front of the other, and with that I slowly get one step closer to fulfilling my dreams, even if they are miles and miles away.
My entire life all I've wanted to be is a wife and mother. Ever since I was old enough to know what marriage was, I knew that was where I wanted to be "when I grew up." I envisioned my future husband, my future children, and my future home centered on God, love for Him, and love for each other. As I grew up I would make lists of things I would and wouldn't do as a mother, and lists of what my husband would be like. I would look at picture of homes and decide what I wanted mine to be like. I watched my mother raise all of my siblings, and me, and I took careful note of the loving and beautiful way she treated us, and her husband. I took careful watch of my dad, and how he treated my mother, and I took mental note of how I wanted my future husband to be "just like that." My vision was clear, and every decision I've ever made in my life has been conducive to that dream. That's all I've ever wanted. I believe that the amount of money you make does not determine success. My belief has always been that success is discovered through family, and the love and fulfillment that comes from having one.
The day I got diagnosed with Lyme Disease, was the day that all of dreams went flying out the window and off into a distant existence where I could no longer reach them. It was the day where I began my endless basket of questions for the future, and since then it's only gotten bigger and bigger. I don't know if my dreams are reachable at this point. And it scares me to think that I'll never be able to be the woman that an amazing man gets to come home to everyday. It scares me to think that I'll never have those babies that I'd get to raise and love. It scares me to think that my home centered on God, will never be.
I have other dreams too. I've always wanted to open a vocal studio. and give to children the incredible miracle of music that my first voice teacher gave to me. I've always wanted to write a novel. One that inspires and uplifts the human soul. I've always wanted to take my voice, and perform with the objective to uplift and inspire peoples lives. I've always wanted to learn how to cook. I've always wanted to become a teacher. I've always wanted to be the perfect homemaker and continuously develop skills that would make it so I could do that. I've always wanted to be someone. I've always wanted to help people.
But how will I ever reach such a far away destination when I'm stuck at home in bed, suffering so bad that I don't even know if I'll make it out alive?
I don't know the complete answer to that, but I'd like to try and answer it anyway.
.Chronic illness is something that you take one minute at a time. Not one day, one week, one month, or even one hour, but one minute. In fact, there are some days that I feel as though I'm taking it one second at a time. And with each precious pain, anxiety, and stress free second, I count that second as a blessing given to me from my loving Heavenly Father. Every piece of strength I manage to muster at any moment I consider a gift from God. I can not do this alone, and I'm grateful that God is always with me.
In every battle, there is always a secret weapon. My secret weapon in this battle is faith. Faith keeps me fighting, and faith keeps my hope for the future. I keep telling myself every moment of the day that I have to keep my faith. Faith that I'm going to get better. Faith that I can fight this and come out stronger. Faith that God is always with me. Faith that God can heal me. Or even faith that I won't be healed, but that I'll find a way to live happily, despite my broken down body, mind, heart, and soul. Without my faith, I am nothing, and my hope that I am so desperately trying to obtain slowly vanishes into thin air.
Some days I have faith that I'll get better, and other days I feel hopeless and despairingly distraught. I look at it this way. Every day I try to do at least one thing that brings me joy. Even if it's microscopically small. If I successfully accomplish one small thing, then I'm not finished yet. Lyme hasn't won yet, and I don't intend on letting it. This trial in my life is incredibly hard, but I want to stay strong. I want to fight this battle, and I want to win. I'm exhausted in every sense of the word, but I can't give up. I just can't.
I'm so grateful to my Savior for giving me the strength I need to continuously fight this. I'm so grateful for the support that comes from my family and others that I hold close to my heart. This is a lonely battle, but knowing that I'm never completely alone is extremely comforting. I'm not giving up yet, and even though the tears streaming down my face scream fear, anxiety, and hopelessness for my future, my faith says otherwise. I intend on keeping my faith in the present in order to dispel my fear for the future. I'll still have my home, my husband, and my children. It just my be a little different vision that I had before. The important thing is that the vision I had of endless amounts of love that takes place in my future will not change, Lyme or no Lyme. In times of fear, my faith will always come out conqueror.
I lay on the couch on Monday afternoon with a good book and a cup of herbal tea. My body felt heavy under my own weight and my head felt similar to a bag of bricks. My eyes felt heavy and my hands shook from all the pressure in my joints. I've had the opportunity throughout my life to get particularly comfortable with the constant companion of nausea, brain fog, cognitive dysfunction, weakness of limbs, and tremors. I've had those for so long it's almost like they're a part of me. But this pain was different. This pain was heavy and exhausting. I almost felt like I was getting a bad case of the flu. At the time, I had no idea what I was in for.
Night came and by then I was paralyzed with pain. Sleeping was impossible. Every time I would lay on one side for too long, it would start to hurt and I would have to roll over to my other side which caused a whole new strew of pain. The bricks in my head turned into a sledge hammer gouging into my skull. The heaviness of my muscles morphed into throbbing pain that bit at every muscle is my body. My spine felt like it was being wrung like an old rag, and my hips felt like someone was trying to detach them from my waist. My legs felt like the muscles were being pounded with a mallet and my feet felt like they didn't even belong to me anymore. Everything was constantly spinning. Everything was throbbing. Everything hurt. I have never been in such terrible pain in my entire life. I've felt lots of pain before, but this was pure horror.
The majority of this lasted for three days. Three days straight of intense pain. One night in attempts to get up and out of bed by myself, I passed out. I hit my head, and bruised my hip on my hard kitchen floor. All I remember is opening my eyes and wondering why I wasn't laying in my bed. I then recalled everything and knew exactly why I wasn't in bed. I wanted to scream. I wanted to cry for help. I wanted to punch something. I had every emotion at once while simultaneously feeling nothing at all. All I can say is I would never wish that pain upon anybody. EVER.
Well I'm happy to say I made it out alive. My pain subsided for the most part and I'm not dead yet. I'm still sore and recovering. I feel like I've been badly beaten up and am barely crawling away from it, but I'm one herx closer to being completely healed from this awful illness and that alone gives me hope. Thank goodness for hope. I will never let go of my hope, for it is my source of peace through this hard and discouraging time.
After this past week, I've gained a new appreciation for my life, for my body, and for the amazing people in my life. I wake up in the mornings now and feel like I'm 80 years old. My body is just sore and my heart and soul are exhausted. But after all of that pain, I'm so grateful. I'm grateful for the ability to walk all by myself, and I'm grateful to be able open my eyes without them hurting. I'm grateful that I can use my hands without joint pain, and I'm grateful that even though my body doesn't feel like it functions properly, it's still functioning. It's still working. It's not giving up. I'm not giving up.
I'm so grateful for all the people around me that love and support me. I feel incredibly blessed to have certain people that I love so much be a part of my life right now. I could not do this without them. Most of all I'm grateful for my amazing parents who never left my side, who stayed up with me all those nights, who provided me with comfort, and who peeled my half dead carcass off the floor after I passed out and brought me back to bed. Thank goodness for my amazing, patient, kindhearted, and loving parents. I can not walk this journey alone. Thank goodness that God has provided me with the amazing people I need to help me through it.
I'm incredibly grateful for one more thing, a huge blessing in my life. I'm truly grateful for my Savior, Jesus Christ. Without Him I would not have gotten through all that pain and suffering. I would be done. There were times when I wanted to be done, but through the Savior's healing power I somehow managed to pull through. Thank goodness for that. I love my God, and my Savior with all my heart. The tender mercies of the Lord that are given to me on a daily basis are truly what get me through life right now, and I am incredibly grateful.
I've shed a lot of tears this week, but I truly believe that tears are a beautiful form of expression. My tears are not a sign of weakness or failure, but an expression of strength and steadfastness. I'm not a quitter, and I'm not giving up yet. I'm a warrior, and I intend on beating this thing no matter how hard I have to fight. So to all the warriors out there, here's a piece of hope. It's not over yet. Keep fighting. It's always rough on the battlefield, but when you come out victorious, you'll remember how hard you fought, and it'll all be worth it.
One thing I truly love about writing is that I get to be completely real. We all have struggles and trials in our lives, and yet we cease to talk about them. We paste on a fake smile and play the tough guy while inside we're falling apart. Well my writing is my safe zone to be real. No fake smiles, no masks, no reminiscence of a barbie doll, and no sugar coating. Just me and my inner most thoughts and feelings; imperfections and all. Sometimes coping isn't possible if you can't get your thoughts and feelings straight, and I suppose that this is my way of saying "Hey, I'm real. I'm a human being. No, I don't look perfect right now. Yes I'm in pain right now. And yes, I did just spend my entire day in bed because of my chronic illness and there is absolutely nothing wrong with that."
With that said, I'm going to be completely real with you now. The holidays are not easy. They never have been. Don't get me wrong. I love Christmas, and I acknowledge the most important parts of the holidays. But even then, there are some days that I'm in too much emotional and physical pain to care about the holiday season at all. Two Christmases ago, my mother was so sick that she could barely get out of bed to spend Christmas morning with us. Since then it feels like the domino effect has taken place in my home and family life. Just one thing after another. What do I have to be thankful for when I don't even really have the strength or motivation to get out of bed on some mornings? How do I put the happy into the holidays when knives are stabbing me in the stomach and my legs feel like they're going to give out at any moment? Where's the merry in Christmas when I'd rather do anything but lie in pain, but my chronic fatigue rather have me lay in bed. I was doing so much better for a couple of weeks, and then it's almost as if my Lyme got bored and decided to torture me for its own sick joy.
A few nights ago I lay on my floor, wincing in pain, and praying for some relief. The tears burned down my smeared face and discouragement flooded my mind and heart. All I wanted was a form of rest at that moment. With Chronic illness sleep (if you can obtain it) is your best friend. Your brief escape. Your peace of mind for the time being. I'm so grateful that even despite all the pain I feel, I'm still able to sleep soundly and forget my agony for a small moment. And with that, there are so many more small moments in life that I feel incredibly blessed to be a part of.
Coping with chronic illness is all about looking to the small moments. I'm so grateful for my family and close friends that I have that bless me with those small memories of joy during a hard time in my life. Life is not all bliss, but seeing the bright side of even the smallest things will bring just enough light into life to make it through the day. So to all that are struggling through the holidays, (or anytime of the year in that case) you're not alone. You're loved, and I pray that every small moment of joy will flood your heart which in turn will allow sorrow to flee from your mind. Look to the little bits of joy that life brings. It's those things that will get you through your hardest times. I hope your holiday season to be full of love, and I hope we can all find Christ in Christmas. I wish you enough strength to get through the holiday season. Happy Holidays, and Merry Christmas.
I feel like I'm running an eternal marathon against life. I run in one direction, as my dreams continually whisk further from my aching and overexerted body. How do you follow your dreams when your body is constantly fighting against everything you ever wanted? I feel as though all odds are against me and I'm ready to collapse in a defeated heap.
A herxheimer reaction is the immune system's reaction to toxins and bacteria being killed within the body. It's usually the reaction to a Lyme patient's treatment. Lyme doctors and patients usually refer to herxheimer reactions as "herxing." There were many days and nights that I watched my mom suffer through herxing as I silently suffered with her as an emotional reaction to that heartbreaking image. Now as I experience it myself, I realize how miserable life can really be.
When I was little I would come home crying with a scraped knee, and as mom provided adequate comfort and healing my tears would slowly fade away, along with the pain that enveloped my knee. Oh how I wish life was that easy now. Along with extreme anxiety comes the feeling of abandonment, heartbreak, and discouragement. As the tears come, they don't fade so easy. Neither does the pain that is reminiscent of a knife gouging out my heart. At times I feel as if I've fallen in a deep hole of total darkness, and there is no way out. There's times when I'm stuck in utter despondency and I feel my heart being crushed under the pressure of reminders that I'm sick, useless, and undesirable. Severe anxiety isn't something to take lightly. Not when utter despair surrounds the very soul that you base your entire existence around.
Herxing doesn't just come in physical pain. Although, that's also a major part of it. A herx for me is like a knife to the heart along with all of the physical pain that comes with it. Dizziness, nausea, headaches, weakness, trembling, chills... I'm feel like I'm losing my mind at times. As if it's slowly fading along with my body. I'm exhausted, and simply tired of being tired. After all those years of watching my mother suffer and not knowing to the full extent what she was going through, I agonize with her now because I'm literally feeling her pain. My mother is so graceful and eloquent in her method of suffering, and this disease has truly made her stronger and gloriously beautiful.
I want to fight this thing. I want to fight until my fighting capacity is weakened to almost nothing. I want to fight until the light of healing pierces through me. I want to come out alive and strong, just like my mother. I truly believe that I can beat this, and be completely healed with proper patience, long suffering, and enduring to the end. As I once lay awake in the middle of the night I thought to myself, "Through this trial I will cleave to my Savior so hard that no intangible substance, no person, and no illness can cut me down. And through Him, my burdens will be lifted, peace will flood my soul, and I will be healed." I'll never forget that spiritual confirmation that all will be okay in the end. Just because things are bad now, does not mean that they will be for forever. And even through my darkest of times I still believe that life is beautiful. I still believe that beauty and light can be found in every minescule crevice that life has to offer. There is light everywhere, it just has to be seen. Life is beautiful, and so is suffering.